Effects of Genetic Hearing Impairment in the Family Book

Contributors     ix
Preface     xi
Acknowledgements     xv
Retrospective Studies
The Impact of Having a Family History of Hearing Loss in Elderly People   Dafydd Stephens   Peter Lewis   Adrian Davis     3
The Impact of a Family History of Hearing Loss in the Blue Mountains Study   Doungkamol Sindhusake   Dafydd Stephens   Philip Newall   Paul Mitchell     15
The Impact for Children of Having a Family History of Hearing Impairment in a UK-Wide Population Study   Heather Fortnum   Garry Barton   Dafydd Stephens   Paula Stacey   A. Quentin Summerfield     29
Early Childhood Hearing Impairment and Family History: A Long-Term Perspective   Per-Inge Carlsson   Berth Danermark     43
Effects on the Working Life of a History of Hearing Problems in the Family of Origin   Lotta Coniavitis Gellerstedt   Berth Danermark     55
Prospective Studies - Late Onset Hearing Impairment
Effects of a Family History on Late Onset Hearing Impairment: Results of an Open-Ended Questionnaire   Sophia E. Kramer   Adriana A. Zekveld   Dafydd Stephens     71
Factors in the Effects of a Family History on Late Onset Hearing Impairment   Dafydd Stephens   Sophia E. Kramer   Angeles Espeso     81
The Impact that a Family History of Late Onset Hearing Impairment Has on Those with the Condition Themselves   Sarah Coulson     95
Influence of a Family History of Hearing Impairment on Participation Restriction, Activity Limitation, Anxiety and Depression   Angeles Espeso   Dafydd Stephens     117
Does a Family History of Hearing Impairment Affect Help-Seeking Behaviour and Attitudes to Rehabilitation?   Claire Wilson   Dafydd Stephens     127
The Impact of a Family History of Hearing Impairment on Rehabilitative Intervention: A One-Year Follow-Up   Christophe Saglier   Fernando Perez-Diaz   Lionel Collet   Roland Jouvent     135
Conditions Associated with Familial Hearing Impairment
The Influence of a Family History of Hearing Loss, and/or of Tinnitus, on Tinnitus Annoyance and Distress   Sylviane Chery-Croze   Hung Thai-Van     147
Tinnitus: The Impact of Family History   Veronica Kennedy   Dafydd Stephens     187
Psychosocial Aspects of Neurofibromatosis Type 2 Reported by Affected Individuals   Wanda Neary   Dafydd Stephens   Richard Ramsden   Gareth Evans     207
Psychosocial Aspects of Neurofibromatosis Type 2 Reported by Relatives and Significant Others    Wanda Neary   Dafydd Stephens   Richard Ramsden   Gareth Evans     227
Attitudes of Adults with Otosclerosis towards Issues Surrounding Genetics and the Impact of Hearing Loss   Anna Middleton   Ioannis Moumoulidis   Graeme Crossland   Mallappa Raghu   Pranay Kumat Singh   Evan Reid   Patrick Axon     237
People's Reaction to Having a Family History of Otosclerosis   Dafydd Stephens   Nele Lemkens     245
Genetic Counselling and Family Reactions
Genetic Counselling and the d/Deaf Community   Anna Middleton     257
Seeing Chromosomes: Improving Access to Culturally Sensitive Genetic Counselling through the Provision of Genetic Information in British Sign Language   Rachel Belk     285
Ethnicity, Spirituality and Genetics Services   Lesley Jones   Ghazalla Mir   Rehana Khan     297
Living with NF2   Peter Crawshaw   Cynthia Crawshaw     321
The Meaning of Hearing Loss in the Same Family over Nearly 200 Years   Anna-Carin Rehnman     327
Research Needs
Family History of Hearing Impairment and Its Psychological and Social Consequences - What Next?   Berth Danermark   Per-Inge Carlsson   Lesley Jones   Dafydd Stephens     343
Index     357