Patient Advocacy for Health Care Quality: Strategies for Achieving Patient-Centered Care Book

Foreward     ix
Preface     xv
Acknowledgments     xxi
About the Editors     xxiii
Contributors     xxv
Introduction     1
What Is Patient Advocacy?   Melissa B. Gilkey   Jo Anne L. Earp   Elizabeth A. French     3
The U.S. Healthcare System and the Need for Patient Advocacy   Pam Silberman   Thomas C. Ricketts, III   Donna Cohen Ross     29
Understanding What Patients are Doing Now and What Providers Can Do to Support Them     59
Family-Centered Care: Why It Is Important, How to Provide It, and What Parents and Children Are Doing to Make It Happen   Beth Seyda   Terri Shelton   Nancy DiVenere     61
E-Patients: How They Can Help Us Heal Healthcare   Tom Ferguson     93
The Long Reach to Basic Healthcare Services: Partnering With Lay Health Advisors to Improve Health Equity   Alexis Moore   Jo Anne L. Earp     121
Improving Providers' Ability to Communicate and Create Relationships     151
The Clinician's Experience: Incorporating Advocacy Into the 20-Minute Medical Encounter   Beth A. Lown   Adina Kalet     153
Accessing the Patient's World: Patient-Physician Communication About PsychosocialIssues   Carol E. Golin   Carolyn Thorpe   M. Robin DiMatteo     185
Advocacy and Patient Literacy: What Healthcare Professionals Can Do To Help Patients Overcome Patient Literacy Barriers   Darren A. DeWalt   Mike P. Pignone     215
Improving the Quality of Care Through Research: Measuring Patient Activation   Judith H. Hibbard     241
Transforming Hospital and Medical School Culture to Support Patient- and Family-Centered Care     261
The Contributions of Patient Advocacy in Patient Safety   James Conway     263
Planetree, a Hospital Model for Patient-Centered Care   Susan B. Frampton   Laura Gilpin     289
Confronting the Hidden Curriculum in Medical Education: The Challenge Faced by Patients, Families, Educators, and Administrators in Changing Medical School and Hospital Culture   Kathy Zoppi   Patricia Sodomka   Julie Moretz     313
Advocacy for Improving End-of-Life Care: A 30-Year Healthcare Cultural Revolution   Gary S. Winzelberg   Laura C. Hanson     333
Making Consumers' Voice Heard in Policy and Law     359
Did Patient/Consumers Cause the Healthcare Crisis? Historical Talking Points for the 21st Century Patient Advocate   Nancy Tomes     361
Advocacy for Residents in Long Term Care: Lessons and Challenges   Elma L. Holder   Barbara Frank     387
Access to Healthcare: Using Data From a Nonprofit Advocacy Practice to Drive Policy Change   Nancy Davenport-Ennis     419
Research Advocacy in Traditional Research Settings: Questions of Influence and Legitimacy   Margo Michaels   Deborah Collyar     445
Advancing Education and Professional Roles in Advocacy     479
Educating for Health Advocacy in Settings of Higher Learning   Marsha Hurst   Martha E. Gaines   Rachel N. Grob   Laura Weil   Sarah Davis     481
Clinical Advocacy-Clinicians Advocating for Patients and Families Facing Complex, Life-Threatening Illness   Mark Renneker   Gwendolyn Stritter   Paul Jentes     507
Using the Law to Strengthen the Patient's Voice   Virginia L. Morrison   Nicola B. Truppin     533
Conclusion     567
Patient Advocacy: A Bridge to Improving Healthcare Quality   Jo Anne L. Earp   Katie Emmet   Elizabeth A. French     569
Index     603