Ethical Foundations of Palliative Care for Alzheimer Disease Book

	Foreword
	Preface
	Acknowledgments
	List of contributors
	Introduction : historical overview of a current global challenge	1
Pt. I	The health care challenge of Alzheimer disease : basic societal, pathological, and clinical issues	5
1	Darkness cometh : personal, social, and economic burdens of Alzheimer disease	7
2	Neuropathology and symptomatology in Alzheimer disease : implications for caregiving and competence	24
3	The clinical challenge of uncertain diagnosis and prognosis in patients with dementia	47
Pt. II	European voices on U.S. and European models of palliative care	59
4	Expanding the scope of palliative care	61
5	Hospital-based palliative care and dementia, or what do we treat patients for and how do we do it?	80
6	Elderly persons with advanced dementia : an opportunity for a palliative culture in medicine	97
Pt. III	Philosophical and theological explorations	113
7	Autonomy and the lived body in cases of severe dementia	115
8	The moral self as patient	131
9	The practice of palliative care and the theory of medical ethics : Alzheimer disease as an example	146
Pt. IV	Clinical ethics issues : focus on patients and caregivers	161
10	The tendency of contemporary decision-making strategies to deny the condition of Alzheimer disease	163
11	Advance directives and end-of-life decision making in Alzheimer disease : practical challenges	181
12	Saying no to patients with Alzheimer disease: rethinking relations among personhood, autonomy, and world	200
13	The ethical challenge of treating pain in Alzheimer disease : a dental case	218
14	Alzheimer disease and euthanasia	226
Pt. V	Organizational ethics issues : educational initiatives, laws, and allocation decisions	241
15	The role of nurses and nursing education in the palliative care of patients and their families	243
16	Ethical dimensions of Alzheimer disease decision making : the need for early patient and family education	261
17	Changing patterns of protection and care for incapacitated adults : perspectives from a European society in transition	278
18	Social marginalization of persons with disability : justice considerations for Alzheimer disease	290
	Commentary on part V : a clinician's commentary from a post-Soviet society on organizational issues of care for Alzheimer disease	305
Pt. VI	Research underpinnings for an ethical model of palliative care	309
19	Biomedical research in Alzheimer disease	311
20	Conducting research in the Alzheimer disease population : balancing individual, group, family, and societal interests	320
21	Drugs and dementia : pharmacotherapy and decision making by primary caregivers	330
App. A	The Declaration of Berg en Dal on ethical principles guiding palliative care of persons with Alzheimer's disease	343
	Commentary
App. B	Framework for an educational module for health professionals	348
	Index	355