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List of tables, figures and boxes
1 Children's and young people's caring responsibilities within the family 1
2 HIV and the family 39
3 Reflexivity, methodology and ethics: the research process 67
4 Living with HIV and the effects on family life: parents' narratives 91
5 Children's and young people's care work in households affected by HIV and AIDS 129
6 Resilience and impacts of care work for individual young people and their families 151
7 Resilience and impacts of young people's care work within the school and wider community 175
8 The role of formal safety nets in building children's and families' resilience 201
9 Global and local processes influencing young people's caring roles in families affected by HIV and AIDS 227
10 Responding to the support needs of children and young people caring for parents with HIV 269
Bibliography 309
Index 337
| Price | Condition | Delivery | Seller | Action |
| $99.99 | Digital |
| WonderClub |
Yicheng Ke
reviewed Children Caring for Parents with HIV and AIDS: Global Issues and Policy Responses on June 16, 2014
Children Caring for Parents with HIV and AIDS
I was asked to review this book for Nature. I accepted the assignment because it is a book about fragile X syndrome and I have a project about this condition.
I was completely blown away - this is a phenomenal book - among the best I have ever read. Clare Dunsford is a masterful writer, but more than that - she is a truth-teller, a truth-seeker, and a revolutionary. Her ability to guide the reader through the experiences associated with having a child with fragile X is so exquisite, that even those with children with different conditions (I have two kids with pseudoxanthoma elasticum (PXE) ), will find their own story told.
I have written my review, which is suppose to appear in the July issue of Nature. I have also decided, with my colleagues, to award Clare Dunsford the Genetic Alliance Art of Advocacy Award in July, at the Genetic Alliance Annual Conference (www.geneticalliance.org).
Wow.
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