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About the Editors vii
About the Contributors ix
Foreword Merle G. McPherson xvii
Preface xxiii
Prologue Jill Chambers Hank Chambers xxix
Setting the Stage for Change
Children with Special Health Care Needs: Evolving Definitions, Evolving Estimates Ruth E.K. Stein 5
Policies and Programs Relevant to Children with Special Health Care Needs Karen Kuhlthau Sheila Bloom Monica Marthell Hodon Mohamed 27
Matters of Finance: How Do We Pay for the Care of Children with Special Health Care Needs? John M. Neff 49
The Parent Experience
Incorporating Children with Disabilities into Family Life Gail Landsman Marcia Van Riper 83
Learning to Care and Advocate for Children with Special Health Care Needs: A Family Perspective Nora Wells 115
The Provider Experience
Creating a Medical Home for Children with Special Health Care Needs Charles J. Homer W. Carl Cooley 135
Primary Care Practice and Children with Special Health Care Needs: Actual and Ideal Thomas K. McInerny 149
Case Management of Children with Special Health Care Needs: The Pediatrician Perspective Robert M. Sheets Paul S. Kurtin 165
Disrupting Dreams, Making Discoveries, and Deciphering Systems of Care: The Long-Range View of the Developmental Specialist Laurel K. Leslie Kristin Gist 179
Present Strategies, Future Directions
Mastering the Health Care System for Children with Special Health Care Needs Elisa J. Sobo 209
Accessing Quality Care for Children with Special Health Care Needs: The Future of Policy and Research Lisa A. Simpson Denise Dougherty 235
Index 277
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Add Optimizing Care for Young Children with Special Health Care Needs: Knowledge and Strategies for Navigating the System, How can primary care physicians and other health care providers help families get the best care and services for young children with special health care needs (CSHCN)? How can families optimize the care to which they are entitled? The answers are here in , Optimizing Care for Young Children with Special Health Care Needs: Knowledge and Strategies for Navigating the System to your collection on WonderClub |