Management of Prader-Willi Syndrome Book

Foreword, Pam Eisen and Giorgio Fornasier
• Preface, Janalee Heinemann
• Contributors
• Introduction
• Louise Greenswag and Randell Alexander
• Part I Diagnosis and Genetics
• Chapter 1 Clinical Findings and Natural History of Prader-Willi Syndrome, Merlin G. Butler, Jeanne M. Hanchett, and Travis Thompson
• Chapter 2 Diagnostic Criteria for Prader-Willi Syndrome, Shawn E. McCandless and Suzanne B. Cassidy
• Chapter 3 Molecular Genetic Findings in Prader-Willi Syndrome, Karin Buiting and Bernhard Horsthemke
• Chapter 4 Laboratory Testing for Prader-Willi Syndrome, Kristin G. Monaghan and Daniel L. Van Dyke
• Part II Medical Physiology and Treatment
• Chapter 5 Medical Considerations in Prader-Willi Syndrome, Urs Eiholzer and Phillip D. K. Lee
• Chapter 6 Gastrointestinal System, Obesity, and Body Composition, Ann O. Scheimann, Phillip D. K. Lee, and Kenneth J. Ellis
• Chapter 7 Growth Hormone and Prader-Willi Syndrome, Aaron L. Carrel, Phillip D. K. Lee, and Harriette R. Mogul * Part III Multidisciplinary Management
• Chapter 8 Neurodevelopmental and Neuropsychological Aspects of Prader-Willi Syndrome, Barbara Y. Whitman and Travis Thompson
• Chapter 9 Speech and Language Disorders Associated with Prader-Willi Syndrome, Barbara A. Lewis
• Chapter 10 Motor and Developmental Interventions, Toni Goelz
• Chapter 11 Educational Considerations for Children with Prader-Willi Syndrome, Naomi Chedd, Karen Levine, and Robert H. Wharton
• Chapter 12 Tools for Psychological and Behavioral Management, Barbara Y. Whitman and Kevin Jackson
• Chapter 13 Educational and Social Issues for Adolescents with Prader-Willi Syndrome, Barbara J. Goff
• Chapter 14 Transition from Adolescence to Young Adulthood: The Special Case of Prader-Willi Syndrome, Ellie Kazemi and Robert M. Hodapp
• Chapter 15 Vocational Training for People with Prader-Willi Syndrome, Steve Drago
• Chapter 16 Residential Care for Adults with Prader-Willi Syndrome, Mary K. Ziccardi
• Chapter 17 Inpatient Crisis Intervention for Persons with Prader-Willi Syndrome, Linda M. Gourash, James E. Hanchett, and Janice L. Forster
• Chapter 18 Family Support and Advocacy—A Role for the Social Worker, Barbara Y. Whitman
• Chapter 19 A National Approach to Crisis Intervention and Advocacy, David A. Wyatt
• Chapter 20 Advocacy Issues: School Discipline and Expulsion, Barbara J. Goff
• Chapter 21 Advocacy Issues: Sexuality, Janalee Heinemann, David A. Wyatt, and Barbara J. Goff * Appendices
• A First Published Report of Prader-Willi Syndrome (in German), Andrea Prader, Alexis Labhart, and Heinrich Willi
• English Translation, Commentary, and Historical Photographs, Urs Eiholzer, Editor
• B A Comprehensive Team Approach to the Management of Prader-Willi Syndrome, Urs Eiholzer, Editor
• C Growth Charts of Individuals with Prader-Willi Syndrome, Merlin G. Butler and F. John Meaney, United States
• Berthold P. Hauffa et al., Germany, Toshiro Nagai et al., Japan
• D Eligibility for U.S. Social Security and SSI Benefits for Individuals with Prader-Willi Syndrome, Barbara R. Silverstone
• E The International Prader-Willi Syndrome Organization (IPWSO)
• F The Prader-Willi Syndrome Association (USA)
• Index