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Brittle Bones, Stout Hearts and Minds is written for patients with Osteogenesis Imperfecta (OI), their families and those who treat them including physicians, nurses, social workers, genetics counselors, and other persons with interests in differing kinds of physical disabilities. The book chronicles life experiences, coping patterns, and strategies for daily living of adults with OI, through personal accounts of medical experiences, education, economics, physical intimacy, dating, marriage, and general lifestyle issues. There are no other comparable books that deal with psychosocial issues of adults with OI.
| Price | Condition | Delivery | Seller | Action |
| $99.99 | Digital |
| WonderClub |
Jeff Keckler
reviewed Brittle Bones, Stout Hearts and Minds: Adults with Osteogenesis Imperfecta on August 17, 2014 Brittle Bones, Stout Hearts and Minds: Adults with Osteogenesis Imperfecta
This was a bit difficult to follow in some places but after it gets going, it has some very valuable information.
I admire Jen's ability to put her thoughts into words, as well as her bravery for sharing her story.
I recommend this book to anyone wanting a first-hand account of what life with Asperger's can be like, especially from a place of not knowing.
It was through Jen's lecture that a family friend attended, that the suggestion that my daughter may have Asperger's came. This led to her diagnosis as well as my realisation of my own need for assessment.
I will always have a special place in my heart for her because of this.
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