Complex Ethics Consultations: Cases That Haunt Us Book

Foreword Albert R. Jensen Jensen, Albert R.

Introduction Live and learn: courage, honesty, and vulnerability Paul J. Ford Ford, Paul J. Denise M. Dudzinski Dudzinski, Denise M. 1

Pt. I Starting at the beginning: prenatal and neonatal issues

1 Quality of life - and of ethics consultation - in the NICU Robert C. Macauley Macauley, Robert C. Robert R. Orr Orr, Robert R. 15

2 When a baby dies in pain Thomas R. McCormick McCormick, Thomas R. David Woodrum Woodrum, David 22

3 But how can we choose? Richard M. Zener Zener, Richard M. 29

4 Maternal-fetal surgery and the "profoundest question in ethics" Mark J. Bliton Bliton, Mark J. 36

Pt. II The most vulnerable of us: pediatrics

5 She was the life of the party Douglas S. Diekema Diekema, Douglas S. 45

6 The sound of chains Jeffrey Spike Spike, Jeffrey 52

7 Susie's voice Rosa Lynn Pinkus Pinkus, Rosa Lynn Stella L. Smetanka Smetanka, Stella L. Nathan A. Koltkamp Koltkamp, Nathan A. 59

8 Access to an infant's family: lingering effects of not talking with parents D. Micah Hester Hester, D. Micah 66

Pt. III Diversity of desires and limits of liberty: psychiatric and psychological issues

9 Helping staff help a "hateful" patient: the case of TJ Joy D. Skeel Skeel, Joy D. Kristi S. Williams Williams, Kristi S. 75

10 Ulysses contract Barbara J. Daly Daly, Barbara J. Cynthia Griggins Griggins, Cynthia 81

11 Misjudging needs: a messy spiral of complexity Paul J. Ford Ford, Paul J. 88

12 When the patient refuses to eat Debra Craig Craig, Debra Gerald R. Winslow Winslow, Gerald R. 95

Pt. IV Withholding therapy with a twist

13 Listening to the husband Ellen W. Bernal Bernal, Ellen W. 105

14You're the ethicist; I'm just the surgeon Joseph P. DeMarco DeMarco, Joseph P. Paul J. Ford Ford, Paul J. 112

15 Haunted by a good outcome: the case of Sister Jane George J. Agich Agich, George J. 119

16 Is a broken jaw a terminal condition? Stuart G. Finder Finder, Stuart G. 126

Pt. V The unspeakable/unassailable: religious and cultural beliefs

17 Adolescent pregnancy, confidentiality, and culture Donald Brunnquell Brunnquell, Donald 135

18 "Tanya, the one with Jonathan's kidney": a living unrelated donor case of church associates Tarris D. Rosell Rosell, Tarris D. 141

19 Futility, Islam, and death Kathryn L. Weise Weise, Kathryn L. 148

20 Suffering as God's will Kathrin Ohnsorge Ohnsorge, Kathrin Paul J. Ford Ford, Paul J. 155

Pt. VI Human guinea pigs and miracles: clinical innovations and unorthodox treatment

21 Amputate my arm, please. I don't want it anymore Denise M. Dudzinski Dudzinski, Denise M. 165

22 Feuding surrogates, herbal therapies, and a dying patient Alissa Hurwitz Swola Swola, Alissa Hurwitz 172

23 One way out: destination therapy by default Alice Chang Chang, Alice Denise M. Dudzinski Dudzinski, Denise M. 179

24 Altruistic organ donation: Credible? Acceptable? Ronald B. Miller Miller, Ronald B. 186

Pt. VII The big picture: organizational issues

25 It's not my responsibility Mary Beth Foglia Foglia, Mary Beth Robert A. Pearlman Pearlman, Robert A. 197

26 Intra-operative exposure to sporadic Creutzfeldt-Jakob disease: to disclose or not to disclose Joel Polash Polash, Joel 205

27 Why do we have to discharge this patient? Sarah E. Shannon Shannon, Sarah E. 212

28 Who's that sleeping in my bed? An institutional response to an organizational ethics problem Daryl Pullman Pullman, Daryl Rick Singleton Singleton, Rick Janet Templeton Templeton, Janet 219

Conclusions, educational activities, and references Denise M. Dudzinski Dudzinski, Denise M. Paul J. Ford Ford, Paul J. 226

Index 243