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Contributors ix
Preface xiii
A The Foundation: Theory and Principles
1 Virtues and Goals in Pediatrics G. Kevin Donovan Edmund D. Pellegrino 3
2 Contributions of Ethical Theory of Pediatric Ethics: Pediatricians and Parents as Co-fiduciaries of Pediatric Patients Laurence B. McCullough 11
3 Using the Best-Interests Standard in Treatment Decisions for Young Children Loretta M. Kopelman 22
4 The Moral and Legal Status of Children and Parents Sadath A. Sayeed 38
5 The Ethics of Pediatric Research Jonathan D. Moreno Alexandra Kravitt 54
6 Truth Telling in Pediatrics: What They Don't Know Might Hurt Them Christine Harrison 73
7 Pediatric Ethics Committees Mark R. Mercurio 87
B Genetics and the Newborn
8 Newborn Screening Lainie Friedman Ross 111
9 Presymptomatic Genetic Testing in Children Kimberly A. Quaid 125
10 Extreme Prematurity: Truth and Justice Geoffrey Miller 141
11 Disorders of Sex Development Alice D. Dreger David Sandberg 149
C Therapies
12 Rationality, Personhood, and Peter Singer on the Fate of Severely Impaired Infants Eva Feder Kittay 165
13 The Ethics of Controlling Reproduction in a Population with Mental Disabilities Paul A. Lombardo 173
14 Pediatric Innovative Surgery Angelique M. Reitsma 186
15 Conjoined Twins Alice D. Dreger Geoffrey Miller 203
16 Ethics and Immunization Joel E. Frader Erin Flanagan-Klygis 219
17 Psychotropic Drug Use in Children: The Case of Stimulants Ilina Singh 231
D End of Life
18 Brain Death, Minimal Consciousness, and Vegetative States in Children Geoffrey Miller Stephen Ashwal 247
19 The Forgoing of Life-Sustaining Treatment for Chidren Sadath A. Sayeed Geoffrey Miller 262
Index285
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