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Genetic Databases Book

Genetic Databases
Genetic Databases, Genetic Databases offers a timely analysis of the underlying tensions, contradictions and limitations of the current regulatory frameworks for, and policy debates about, genetic databases. Drawing on original empirical research and theoretical deba, Genetic Databases has a rating of 2.5 stars
   2 Ratings
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Genetic Databases, Genetic Databases offers a timely analysis of the underlying tensions, contradictions and limitations of the current regulatory frameworks for, and policy debates about, genetic databases. Drawing on original empirical research and theoretical deba, Genetic Databases
2.5 out of 5 stars based on 2 reviews
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  • Genetic Databases
  • Written by author Richard Tutton
  • Published by Taylor & Francis, Inc., March 2004
  • Genetic Databases offers a timely analysis of the underlying tensions, contradictions and limitations of the current regulatory frameworks for, and policy debates about, genetic databases. Drawing on original empirical research and theoretical deba
  • Over the past few years there has been a proliferation of genetic databases and biobanks, which promise to increase scientists' understandings of the way our genes interact with the environment. These biomedical research projects involve hundreds of thous
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1Introduction : public participation in genetic databases1
2Persons, property and gift : exploring languages of tissue donation to biomedical research19
3Blood donation for genetic research : what can we learn from donor's narratives?39
4Levels and styles of participation in genetic databases : a case study of the North Cumbria Community Genetics Project57
5Informed consent : the contradictory ethical safeguards in pharmacogenetics78
6Ambiguous gifts : public anxiety, informed consent and biobanks97
7Abandoning informed consent : the case of genetic research in population collections117
8Children's participation in genetic epidemiology : consent and control139
9'Public consent' or 'scientific citizenship'? : what counts as public participation in population-based DNA collections?161
10Tissue collection and the pharmaceutical industry : investigating corporate biobanks181


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Genetic Databases, Genetic Databases offers a timely analysis of the underlying tensions, contradictions and limitations of the current regulatory frameworks for, and policy debates about, genetic databases. Drawing on original empirical research and theoretical deba, Genetic Databases

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Genetic Databases, Genetic Databases offers a timely analysis of the underlying tensions, contradictions and limitations of the current regulatory frameworks for, and policy debates about, genetic databases. Drawing on original empirical research and theoretical deba, Genetic Databases

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Genetic Databases, Genetic Databases offers a timely analysis of the underlying tensions, contradictions and limitations of the current regulatory frameworks for, and policy debates about, genetic databases. Drawing on original empirical research and theoretical deba, Genetic Databases

Genetic Databases

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