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| Foreword | ||
| Preface | ||
| Introduction | 3 | |
| 1 | Coping With the Diagnosis | 5 |
| 2 | When to Ask for a Second Opinion | 13 |
| 3 | Neuromuscular Disorders: History, Incidence, and Genetics | 20 |
| 4 | Neuromuscular Disorders: Descriptions and Treatment | 26 |
| 5 | Your Medical Team | 78 |
| 6 | Navigating the Medical Maze | 90 |
| 7 | General Medical Care | 97 |
| 8 | Special Needs | 105 |
| 9 | Tips for Mothers, Fathers, Grandparents, Brothers, and Sisters | 117 |
| 10 | Tips on Coping With Your Child's Ups and Downs | 131 |
| 11 | Helping Develop Your Child's Coping Skills | 140 |
| 12 | Finding the Best School Program | 148 |
| 13 | How to Be a Strong Advocate for Your Child | 164 |
| 14 | What Lies Ahead? | 172 |
| 15 | Questions and Answers | 175 |
| 16 | Surviving the Loss of a Child | 182 |
| App. A | The ABCs of Genetics | 189 |
| App. B | Tables | 193 |
| App. C | Chores Chart for Children | 201 |
| App. D | Resource Directories | 203 |
| Glossary | 257 | |
| Suggested Readings | 263 | |
| Index | 267 |
| Price | Condition | Delivery | Seller | Action |
| $99.99 | Digital |
| WonderClub |
Ramiro Luna
reviewed Raising a Child with a Neuromuscular Disorder: A Guide for Parents, Grandparents, Friends, and Professionals on June 28, 2012
Raising a Child with a Neuromuscular Disorder
This book is odd. The writing is what I would recommend telling a child after a death. However, it is written as though it is a speech to be given to the child, rather than a book to read to them. Also the illustrations are a little creepy - they remind me of the Rorschach. If a parent told me they just wanted to talk to their child about death, and NOT read a book to them, I would have them read this book before the talk, and use a lot of the same language. However, this book should probably never be shown to a child regarding death, as even the font is creepy and reminds me of decaying things.
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Add Raising a Child with a Neuromuscular Disorder: A Guide for Parents, Grandparents, Friends, and Professionals, Raising a child with a neuromuscular disorder can be a overwhelming experience for even the strongest parent or grandparent. Dr. Charlotte Thompson, a leading authority in pediatric neuromuscular disorders, draws on her 38 years of experience treatin, Raising a Child with a Neuromuscular Disorder: A Guide for Parents, Grandparents, Friends, and Professionals to the inventory that you are selling on WonderClubX
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Add Raising a Child with a Neuromuscular Disorder: A Guide for Parents, Grandparents, Friends, and Professionals, Raising a child with a neuromuscular disorder can be a overwhelming experience for even the strongest parent or grandparent. Dr. Charlotte Thompson, a leading authority in pediatric neuromuscular disorders, draws on her 38 years of experience treatin, Raising a Child with a Neuromuscular Disorder: A Guide for Parents, Grandparents, Friends, and Professionals to your collection on WonderClub |